Growing up in a family affected by Huntington’s disease (HD) is extremely challenging and difficult. We are establishing a Youth Program which will support young people in NSW who face unique challenges because of HD. HD is like having Parkinson’s, MND and Alzheimer’s all at the same time. It is a genetic, neurological disorder characterised by involuntary movements, personality and behavioural changes, speech and swallowing difficulties. Age of onset is usually between 35 and 45 years and it affects both males and females. There is no proven treatment or cure. Each child of an affected parent has a 50% chance … Continue reading Huntington’s Disease
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